What is the value of a personal information file for patients with cancer?

Outline
An information file for cancer patients has been devised following wide consultation with patients, carers and health professionals. This was done under the auspices of the National Cancer Alliance (NCA). The Teamwork File comprises a range of different elements, including generic written information and a personal health diary that contains space for patients to write notes and keep a record of their health and healthcare. We are implementing and evaluating the file across the South East London Cancer Network and in partnership with the Oxford Cancer Network and the NCA. This is part of the Cancer Services Collaborative, a national programme aimed at improving the outcomes and experience of patients with suspected or diagnosed cancer. The Cancer Services Collaborative seeks to improve the 'whole system' of care, with a key component being the patient and carer experience. The methodology involves introducing small-scale changes, closely evaluating the impact of those changes and further refining processes as required. Using this methodology, we are examining different approaches to the implementation of the Teamwork File and patients' and health professionals' perceptions of the utility of the File.

Duration of study
2000-2001

Main researcher
Katie Burall

Publications
Publications pending